Cerebral Amyloid Angiopathy Symptoms: Let's talk about it.

It's all very well to talk about the power of vulnerability and the personal growth that can come out of that. You can have all the counselling that you need and want, and prepare yourself for your life and what may lie ahead of you. You can talk about being in The Arena  (see post on 15/4/25)  but sometimes and some days you can just feel sad. Today is such a day. My husband is more confused than is typical for him, he is aware of how confused he feels and he doesn't quite know what to do with himself. The combination of his own insight and observing him and helping him with his difficulty doing some of the simplest tasks with his phone is hard. It is just plain sad and there is no denying it. There is no point denying it. I am still in the arena but feeling a bit deflated and on my haunches, not quite ready to stand up again.  In the words of Ben Crowe and others, you can't control what happens to you but you can control your response to it. My response today is to...

  Having major surgery several months ago and being somewhat incapacitated for a period of time post-surgery, has made me reflect on our situation. Too often perhaps I pass off my husband's symptoms as a day to day issue and don't give sufficient thought to his life and how it feels to be walking in his shoes. Given that I knew I would recover (unlike my husband) it has made me think more about life for both of us if something significant happened to me. My husband is very dependent on me (not physically but mentally) for many day to day tasks. I have been physically dependent on him for several months.  As a carer, I am not alone in feeling the vulnerability of being responsible for caring for my husband but my own physical incapacity has made be feel what if the shoe was on the other foot. What if my husband had a further serious stroke (which the chances are that he will) and I need to care for him both physically and mentally. What would that look like and feel like for bo...